Monthly Archive for March, 2006

Gimme Back My CancerPod

It’s not just that they stole my iPod, although the iPod did have sentimental value. Cindy gave it to me when I was diagnosed, and it had a famous Nietsche quote etched in the back that read “Without music, life would be a mistake.” Which was fitting for me, and for Cindy. And I like having an iPod.

And the two checkbooks and CD player that they also stole. I liked having those as well.

I would say that they broke into my car and stole these items, but I’m going to be honest and say that it might not count as breaking in if the car doors were unlocked. But who would have thought that somebody would hike back to our unincorporated corner of the woods and dive into my little Honda for something to brag to their friends about.

And I could get a little depressed about it. Which I have. I don’t really believe in luck, but if I did, I’d say that it’s about time I had a little.

But that would negate all the good, lucky things that happen frequently to me. Which I will not list in detail because I’m really only saying that because I feel I should, and not necessarily because I believe it right now.

Anyway, somebody came right up to my parent’s place, went into my car, stole my iPod, my checkbooks and my CD player. Please don’t write me and say things like “Oh! You really kept all those things in your car?” or “Did you lock it?” or “Why did you keep all those things in there and not lock it??” Believe me, I already recognize the stupidity, there’s no need to point it out.

The CancerPod is gone. Goodbye CancerPod, I hope you make someone else very happy.

Speak Easy

The hospital decided not to have me talk at the survivor function in June. Maybe they read this blog (hello), and decided I wasn’t quite what they were looking for. If that’s the case I’d like to think it’s because I’m a little too honest about the experience of cancer. Sometimes it’s inspiring, which I think is what people mostly want to hear about cancer, but most of the time it’s not. It’s funny, sure. It’s sad, yes. It’s touching, and debilitating, and envigorating, and messy and awful and maybe even common.

My doctor, I hear, is going to be giving the speach, which I think is a much better option anyway. I’ll be interested to hear what he says.

I was asked to give another speach, this time at a National Honors Society induction ceremony in South Bend, IN. I can’t do it, as I have a gig already booked for the date, but I would have liked to.

Again, as before, I wonder what I might have said. I’d have been talking to a room full of promising high school students, who probably all have a good idea of what their life will be like – which is to say – have no idea what their life will be like. If they are like I was at that age, they’re probably in for quite a shock in the next 7 years. People grow up, and get married, and drop out of school, or stay in school, and have kids, and make decisions… And people get cancer. And people survive. And people don’t survive. It’s all a lot more complicated that it seems when your standing on the threshold like they are.

I guess I’d tell them that life is worth living well. That there’s just to many days thrown away. People wait for holidays, or Saturdays, or Sundays, to do something really worthwhile, and they just throw away the days and weeks in between as days that didn’t mean as much, in which nothing really special happened.

I’d tell them that dreaming isn’t just what you do at night. That the biggest limitations in life are the ones we put on ourselves. And to take more pictures, and write more blog entries and do something today that you’ll be able to think about fondly tomorrow.

Port Flush Me

I had another port flush on Monday.

Shirley was there. Getting chemo, I think. She told me she loved me. I told her I loved her too, but I sort of mumbled it and had trouble looking at her when I said it. Sometimes I do that. Cancer patients are quick to tell anybody that they love that they do, but I guess I’ve retreated back into the alternative. Maybe I’ve forgotten that life is short. I guess I have.

The hospital has asked me to speak at a survivors function in June. It’ll be held in a ballroom in Elgin and attending by survivors, doctors, nurses, maybe patients, too.

What on earth can I say to a roomful of survivors, oncologists, and oncology nurses that they don’t already know?

I’ll imagine I’ll skip the clinical-speak. Surely they know all the statistics. And I’ll go easy on specifics of my chemo. I suppose they don’t need to know what kind of anti-anxiety meds they filled me with, or how many mL of Bleo they put in me.

I told my doctor about the speech and his only advice was that I, under no circumstances, should talk about him.

So I definitely have to come up with something about him.

I’ve got plenty to say about the shoddy shape of the American health insurance system, but I think I’m supposed to be inspirational, and there’s nothing inspirational about health insurance in America.

I could talk about being a pianist. With a CD out (by then, hopefully). Who needs more piano students. And is available for private parties and restaurants. For $75 an hour. Then I could hand out my card and free demo CDs. And maybe put a bumper sticker on my back that says “HIRE THIS MAN”. I could put up a copy of my resume and rates on a projector. Hand out coupons or something.

Which would be shameful.

No, it’ll need to be something personal. About how I got through chemo and planned on going on a great, inspirational trip to the California mountains. But then I got offered money to stay home, so I didn’t go on the trip, and instead worked 7 days a week to make about 1/2 the money one would need to live comfortably, and then had trouble looking people in the eye when I told them I loved them. And I stopped watching the seasons change, or relaxing long enough to see a movie with my girlfriend, or go to dinner with a friend. And I only replied to e-mails that related to making money. And I ignored medical bills, and racked up my credit card, and ruined my finances, and mostly just became a small person, with small ambitions, and a short wick, who never went anywhere except work and bed.

But that wouldn’t be very inspirational.

Maybe I’ll say how I decided after being diagnosed that I’d never lower my ambitions to anything ordinary, and instead, I’d live an extraordinary life as a musician, and an author, and a friend, and a lover, and a traveler. And even though it is never easy, I know that life is too short to forget my intentions.

But which version is true?

Both.

Maybe I’ll just try not to talk about myself. Maybe I’ll talk about Shirley or Courtney. Courtney – maybe after your surgery today you can do something inspirational, or funny, or cute, and I can talk about anecdotally in June? Just waking up will seem pretty inspirational to me, but we’re talking about a roomful of oncologists here, it might take more than that.

By the way, Courtney, I’m worried about you today.

What Not To Say To a Cancer Patient

I’d say for the first 4 months after diagnosis, cancer was the only thing I thought about. Even when I thought about something else, I thought about it in relation to cancer. It consumed my every single thought. So when I would run into somebody that didn’t know about the diagnosis, I couldn’t ever think of anything else to talk about.

Some people responded very strangely to the news, though, when I told them. Most people would be shocked, or worried, or both, but some people… Some people would totally ignore it. Like I never said it. Or they’d act like “I have cancer” is a normal thing to say. Or worse, some people would mark that as the end of the conversation. “Ok, well, I got to go,” they’d say hurriedly. Or they’d change the subject immediately. The news would just send them directly into fight or flight mode, and they’d start running. It was interesting.

It’s such awful news, that there’s bound to be some inappropriate responses to it.

The worst, I thought, was when someone knew about it, but would play dumb until I told them. They’d ask me what I’m up to and then stare at me. It would be the stare that would give them away. They’d just be too interested in my response. So I’d hint at it a bit, “oh, I haven’t been feeling that well,” or, “well, things have been better…” Hoping they’d just say, “yes, I heard.” But instead, they’d say, “oh?” So I’d have to go through the mix of emotions that always came whenever I’d have to tell someone that I had cancer.

And once I went through all that, they’d say, “oh, yeah, I know.” Still staring. Waiting for the show I guess.

Everyone, let me explain how you should respond to someone who just got diagnosed with cancer:

Do not ignore them. Do not stop calling them because suddenly you don’t know what to say. Do not try to avoid them in social situations because you are uncomfortable.

Go up to them. Call them. E-mail them. Tell them, first, that you heard about the cancer. Tell them second that you think it sucks and you’re sorry to hear about it.

Don’t talk about your uncle who died of the same cancer. Don’t talk about how your whole family has had cancer, and you’ll probably die of it, too. Don’t talk about how many people die of it every year. Don’t talk about death.

Don’t talk about how you once got diagnosed with pneumonia, so you can understand what it’s like. No you can’t. Don’t try. Tell them you can’t even imagine what it’s like to go through something like this.

Do not talk about the alternative medicine that you read about in Crazy Monthly, that is sure to cure them of their disease. Don’t tell them that their treatment isn’t good for them, and that lot’s of people end up dying from the treatments, or that chemotherapy is just a big conspiracy between the government and the pharmaceutical companies, etc., etc. Don’t tell them how they got it. Just stop. They don’t need to hear about it.

If they are sad about it, don’t tell them that they shouldn’t be sad. They have a right to be sad, or exhausted, or whatever it is they feel. Don’t tell them what to do.

Ask them about the treatment – then listen to the response. It might be a long response, with a lot of medical terms. Listen anyway. It’s all they probably think about right now, anyway, so just let them talk about it.

Give them a hug, or a handshake, or a pat on the back. Touch them somehow. Tell them that you’re concerned for them, and you’re looking forward to them being a cancer survivor.

Do not give them the line, “if there’s anything I can do just tell me…”, unless you are absolutely certain that you would do ANYTHING for them. Just don’t say it. Because most people don’t mean it. If you really want to do something for them, come up with the idea yourself, and then do it. Send them flowers, or a book, or bring over dinner for them.

Courtney I do not support your decision to have…

…breast cancer. I’m telling you, this is a terrible idea. Just turn around now and forget about this whole nonsense…

Most of you probably know Courtney, if you know me. We’ve been friends for years. 12 years, I guess, which is a long time when you are young like us. Long ago we played opposite each other in the Music Man as Marian and Harold Hill (hint: I was not Marian).

Courtney was diagnosed with breast cancer about 4 weeks after I finished chemotherapy. I don’t mean to relate everything to me, but I just think it strange – we both think it strange – that’d we’d both be unlucky enough to get cancer in basically the same year. Before I was diagnosed, I hardly knew anybody with cancer. What happened to us?

Courtney, I’ll know you’ll read this, and I know I’ve told you this before, but I’ll say it again. This sucks. You’ll be ok, and you’ll live, and I’m proud of you for running head first into this mess with your characteristic confidence – but anyway – I’m sorry you have to go through this. I’d go through it all over again if it meant you wouldn’t have to.

Courtney will be ok. But it’ll take the rest of this year to get her there. Breast cancer isn’t as neat and clean as cancer as Hodgkin’s. Breast cancer fights dirty and tries to suck the life out of you like a late-summer mosquito.

And no, I couldn’t think of a better metaphor. Late-summer? Mosquitos? Anyone? Hush, it’s not that bad.

I brought Courtney a Chemo Care Package last week. It was a basket filled with digestinal aids, over-the-counter drugs, and books that helped me get through cancer. I also put a few books in there that I never read, that I feel I should have, and that I fully expect Courtney to read for me and tell me what happens (hear me Courtney? I want book reports).

Love you Courtney. No, I’m not getting sappy. Just beat this thing. That’s all I’m saying.

Comments

Anita: “Thank you David. To be honest, I have been so utterly…
February 4, 2012, 10:55 am
David J. Hahn: “Hi Anita – that sounds like a terrible situation that you’re in,…
February 4, 2012, 9:47 am
David J. Hahn: “Hi Baz – I’m so sorry to hear that you and Jan…
February 4, 2012, 9:45 am
Anita: “Thank you everyone! I stumbled upon this blog this morning feeling so…
February 4, 2012, 7:04 am
Baz Reilly: “Dear David, Thanks for writing down your feelings about the Chemotherapy treatment it…
February 4, 2012, 5:25 am
DJP: “Great news…
January 21, 2012, 2:30 am
DJP: “Thank you very much for this, it seems like I do all…
January 21, 2012, 2:27 am
DJP: “Thanx for this info, we have someone in our family who recently…
January 21, 2012, 2:16 am
Mellisa: “My best friend is having the same symptoms. I am taking her…
January 20, 2012, 12:47 am
Ebenezer( must read): “Hi guys Im glad I ran into this blog. Like you all…
January 18, 2012, 9:55 pm
sylvia: “glad tito is gone:)Hope your doing wonderful!…
January 18, 2012, 5:05 pm
Cassie Moyer: “Hi! One year ago tomorrow I was diagnosed with cancer—I’m in remission…
January 16, 2012, 6:11 pm
Shana: “Hi David, I am and 15 year old girl going through Chemotherapy now…
January 14, 2012, 2:16 pm
Kate: “I was actually looking for a blog about how to communicate to…
December 24, 2011, 5:04 am
Daniela: “It was nice to hear and sad to hear what u or…
December 15, 2011, 2:17 pm